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PDF) COVID-19 and rare diseases: reflections and recommendations by the International Rare Diseases Research Consortium
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Future of Rare Diseases Research 2017–2027: An IRDiRC Perspective - Austin - 2018 - Clinical and Translational Science - Wiley Online Library
Daria Julkowska - IT GGB Assistant director / Scientific coordinator of the European Programme on Rare Diseases - INSERM | LinkedIn
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